Comments on: 30 Things About My Invisible Illness You May Not Know

By: 30 Things by Others (invisible Illness) | KelliAEllis.com – Sharing Discussions on Fibromyalgia, Chronic Fatigue Syndrome and Other Related Health Issues

Fri, 14 Jan 2011 03:51:28 +0000

[...] Kim – http://cupcakesandmace.com/2009/09/18/30-things-about-my-invisible-illness-you-may-not-know/ [...]

By: Ms Constantine

Ms Constantine — Mon, 21 Sep 2009 15:53:38 +0000

Thanks Charlie. I guess I’ve been living with it for long enough now that I’m not embarrassed any more. Bowels and their movements are one of those taboo subjects that no one wants to know about but everyone can relate to.

By: Ms Constantine

Ms Constantine — Mon, 21 Sep 2009 15:51:23 +0000

:D Thanks Tash

By: Tash

Tash — Mon, 21 Sep 2009 15:46:12 +0000

Go Team Kim! You have taught me something new, as per usual.

By: Charlie

Charlie — Sun, 20 Sep 2009 22:32:56 +0000

Your so brave for sharing so much about something you could be so embarrassed about. It’s great your getting the info out there so more people know about it. I’ve know people with Chron’s and know that so many people have no idea what it is so good on you for sharing. It’s great to see you have such a positive outlook :)

By: Ms Constantine

Ms Constantine — Sat, 19 Sep 2009 14:01:16 +0000

Hi Kat. That really sucks but hopefully now that your doctor is listening you’ll be able to get the proper medication and get it under control.
I have a pretty normal life and tend to only have pain when I eat things that I know will make me a bit sick! (stupid I know but I can’t deny myself coke and ice cream all the time!) It took a couple of years of flare ups and being on steroids for it to calm down.

My partner has been great through all of this. At the start when I had just started on medication, learning how my body works etc it could be a bit awkward. When things are already sensitive “down there” and inclined to act however they like whenever they like, and then you add another foreign thing to the mix it can be a bit uncomfortable. But now I’m all under control and I have a normal relationship. And we make fart jokes far more often than might be considered normal. lol.

If you ever want to talk about it drop me a line. :]

By: kat

kat — Sat, 19 Sep 2009 10:36:32 +0000

Wow! I found your blog because I love your acrylic art, and had no idea you had IBD. I am currently waiting for an appointment with a specialist, after 3 years of symptoms and being told that it was irritable bowel symptom, the Dr has finally realised that my symptoms are not normal. It’s so good to hear that there are people out there with this condition who live a normal life. And have relationships – I’m currently single and the thought of explaining to a new partern about the whole thing scares me!

By: Lisa

Lisa — Fri, 18 Sep 2009 22:53:20 +0000

Thanks so much for your wonderful post and participating. I’m Lisa, the founder of II Week and just visiting random blogs. I found your disclaimer interesting yet also respectful, but just for the record…. I would NEVER imagine denying myself or anyone medical care because I also believed in prayer.

I think medical science and prayer can go hand in hand. I thank goodness (and ironically, the Lord) that I have access to the medications and treatments I have available for my rheumatoid arthritis. And like you mentioned, the fact that I can LIVE with this illness in today’s age, thanks to medical science, and not have it be the end of the life.

Thank you so much for creating more awareness. I hope you were able to make some of the workshops!

By: Ms Constantine

Ms Constantine — Fri, 18 Sep 2009 17:25:04 +0000

By: Natalie

Natalie — Fri, 18 Sep 2009 17:20:58 +0000

I’m so happy so many people are doing this questionnaire! It makes me feel like I’m learning something every time I read a new post. I never knew exactly how Crohn’s or colitis affected someone, other than that they can be completely painful and life-interrupting.

Horah! More sharing means more knowledge and understanding :D